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The talk I didn't want to hear.  

whoisagentj 54M
661 posts
7/19/2019 6:44 am

Last Read:
7/22/2019 5:53 am

The talk I didn't want to hear.


Yesterday I talked with my mom about her chemo treatments. It really scared me yesterday.

My mom is in her 10th treatment. She has to do a total of treatments before the doctors get her into a cat scan to see if the cancer is gone. Here's the thing...after her treatment is fully done and she does the cat scan, she's off of the chemo for a period of 3 months to recover. However...if the cancer isn't fully cleared out...she still has to wait 3 months to recover, and then they put her on chemo again. But the problem is...in those 3 months, the cancer can get worse. They can't operate on her to get the cancer out because her cancer has spread to<b> multiple </font></b>areas in her colon and lymph nodes. They would have to gut her like a fish in order to get it out, and that's not possible.

My mom has already said that if they don't clear the cancer out of her with the chemo these next two treatments, and the cat scan reveals the cancer is still there...she's not going back on another 6 month round of chemo. She's going to ride it out and then let the cancer take her naturally if that happens.

I understand what she's saying. But the finality it was scary. It was hard to take in and accept it. All I can pray for is that the cancer is gone and she beats it. But I don't know if that will happen. And if it doesn't happen, then I have to accept the mortality of my mom's passing.

I've talked about this before, but seeing her go through this is so difficult. In a sense, I am my mother's caregiver. I've had to deal with helping her to the bathroom, cleaning up the puke, changing her bedding because she pissed in her bed because she couldn't get up in time to make it to the bathroom, helping her up and down stairs, getting her meds. It kills me to see her this way.

I've been sitting her for over a half hour now trying to come up with something else to say and I can't think of anything to end this post. Something positive, something upbeat, something filled with hope, and I can't. I just can't.

Who can you call on to save the day?

Why none other than...


Agent


RyuFujin 56F  
1445 posts
7/19/2019 9:58 pm

Oh J, I'm so sorry. This is perhaps the hardest thing for anyone to face.

I have a very good friend and former roommate, who's G-maw developed pancreatic cancer quite suddenly. She was a funny lady, and "adopted" me as an honorary grandkid; I was over there every XMas with the rest of the blood relations. Those were really good times...

When she got the news that she had it, the cancer had metastasized to inoperable areas throughout her body. She was on chemo for a time, but couldn't hardly eat a thing; it made her sick as a dog.. She battled hard with everything: chemo brain-fog, endless puking up whatever food she tried to eat, not wanting to live and voicing it a majority of the time to family... I could go on.

The last time I saw her alive, the cancer had whittled her away to skin and bones. It broke my heart to see such a bright light slowly being dimmed..

My friend and his family started to talk about the End of Life option during that time, but she succumbed to the cancer within a year after the diagnosis. It will be four years this August since her passing, and not a day goes by that I don't think about such a great person.

Hang in there, we're all here for you.


"Be who you are and say what you feel. Those who matter won't mind, and those who mind won't matter." ~ Dr. Seuss.


whoisagentj replies on 7/22/2019 5:53 am:
Thank you RyuFujin. Needless to say this is a difficult time for me.

thax013 46M
1089 posts
7/19/2019 12:11 pm

I’ve been through that twice with grandparents, hard stuff.

I’m sorry that you and her are going through this.

Visit my blog if you want to at thax013 and thank you very much!


whoisagentj replies on 7/19/2019 4:37 pm:
Thank you thax. It's probably one of the hardest things to go through in life, I think, facing the mortality of your parents.

SexySexySophie 41F
1989 posts
7/19/2019 11:18 am

My mom was blind before she passed away from heart disease. I could not bear going into a store knowing that I would no longer be holding her hand to lead the way. If I could do anything at all to bring her back, I would.

With that said. My mom lead the way in our family to flat out reject chemo. In the family we have had 2 cancer diagnosis' and 1 mammogram referral. All of which we ignored and proceeded to natural treatments. We are all just fine.

There are more possibilities than one is lead to believe. These are the options:

A. Chemo (awful, but doc say its the only chance to live)
B. No chemo (certain death, they say)
C. Doing nothing (contrary to common belief doing nothing is not a 100% mortality rate, but we don't know because there are virtually no studies. But I have met friends who have refused treatment and lived much longer than they were predicted to live on chemo. A woman with stage 4 bone cancer lived 15 years after diagnosis without any treatment.)
D. Try natural treatments. (Also no data on this. But I have personally known persons who have done them and are living just fine decades later.)

Choosing a different treatment is a very personal decision. I just want you to know that its there. If that's something you'd like to know more about feel free to message me and I can point you to some literature you might want to explore.

Things like magnesium supplements, vitamin D and fresh vegetables can make a significant difference and might be something the doc and your mom probably won't object to.

Whatever happens, very best luck to you and your mom! You are a good son. Big big Hugs.


whoisagentj replies on 7/19/2019 11:26 am:
Thank you Sophie.

capox1 73M

7/19/2019 8:16 am

    Quoting  :

Life's exit is just that- it is a continuation of the journey we all take- the soul does not die- we continue on another journey-


whoisagentj replies on 7/19/2019 9:14 am:
Agree with that, but right now, the pain is still real watching her deal with this.

capox1 73M

7/19/2019 8:15 am

I did 72 rounds of treatment(once a week for 18 months) and then used essaic tea (Ojibway of Life ) to clean out the poison left behind from treatments- I never gave up- no matter how bad you feel- never give up- I feel for you Agent J


whoisagentj replies on 7/19/2019 9:13 am:
I've been begging her to get the tea, but she's been stubborn and won't try new things. It's driving me crazy, but I can see the life just wearing out on her.

umaykissmesoftly 67F  
344 posts
7/19/2019 7:23 am

So sorry, I totally understand as I went through it with my husband. I never counted how many rounds of chemo he had, but the first time was 3 months worth every week, with an occasional overnight or weekend, with radiation treatments thrown in somewhere He went into remission for a few months, then it came back with a vengeance. Stem cell transplant, remission for almost 2 years, then back once again. He decided no more treatments. I was upset, but it was his choice. He never discussed his feelings with me or how he felt physically through it all, but he decided he had had enough.
Just bear in mind that some feel it's better for them to stop treatment than continue on based on how they're are feeling physically and emotionally. Sometimes it's quality of life rather than quantity of life.
Best wishes to you both.


whoisagentj replies on 7/19/2019 9:11 am:
I agree with that completely. However it's still somewhat overriding my brain that I want her around longer.

bitchkitty2017 71F

7/19/2019 7:21 am

Awww sweetheart its hard to be in such pain and i wish i could take some of it away...from experience in a few matters similiar...give her support in any decision she makes no matter how much it hurts you..after what you said and after the amount of care you have given her , just step back and allow her to process that which she needs to make any final decision...thats all she needs from you is just a bit of space and time to come to terms with any decision, as you have to do as well.....i realize there is a time frame here....but you both need to breathe. I know this is not any help for you but , maybe its just about space..she may change her mind ..


whoisagentj replies on 7/19/2019 9:09 am:
Well, I'm just taking it moment by moment right now. But it's like I can see the finality of it all and it's somewhat overwhelming.

whoisagentj 54M
6060 posts
7/19/2019 6:45 am

I wish I had something better to post.

Who can you call on to save the day?

Why none other than...


Agent


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